When someone falls ill with dementia it affects the whole family. Therefore, the aim of this qualitative single case study was to increase understanding of one female spouse´s experiences of living with a husband/partner diagnosed with early-onset dementia before the age of 40 years. Two open-ended interviews with the female spouse were performed six months apart and analysed for narrative structure and themes. The single case is described in the form of a story and organised along a time line comprising four phases; «Something is wrong», «Becoming aware of what is wrong», «Life is restricted» and «Towards reconciliation». Healthcare professionals should meet spouses with respect, listen to them and provide practical support, thus giving them the opportunity to rest, obtain respite and time on their own to enable reconciliation and wellbeing.

Keywords: Caregiver, frontotemporal dementia, health, spouse, struggle, suffering, time