Family-centred care (FCC) is considered essential in neonatal nursing. Consequently parents of premature infants are increasingly expected to participate in the care of their infant. Research shows how healthcare professionals and families are uncertain as how to manage their roles in daily practice. The purpose of this study is to investigate the significance of the parental role in FCC in a Danish context.
Through a qualitative content analysis of four pamphlets and one article, the study illustrates how parents of premature infants are offered five different roles: 1) cooperating parents 2) natural caregivers, 3) knowledge-seeking parents, 4) thoughtful parents and 5) «early discharge programme»-friendly parents.
Several elements of FCC are reflected in the writings. The material can thereby provide a clarifying description of the parental role.
Written information that considers health literacy, critically analyses underlying discourses, involves families and includes evaluation is suggested as a way to further improve the implementation of FCC.
Disease challenges us humans, not just physically, but also existentially and spiritually. For centuries this has been the focus of spiritual care. The nursing profession originates directly in spiritual care. However, research suggests that there is as much need for spiritual care today in a high-tech time when efficiency is paramount, and where internal human values are often pushed back by efficiency.
All this is the main focus of the emerging research in spiritual care, the key findings of which are presented in this article. First, we present the historical background for spiritual care in relation to the nursing profession; then an overview is provided of the international and now Danish research in the relationship between faith and health and spiritual care. Finally, the main questions about implications are examined, including why, what, how and by whom when spiritual care is at stake.
Positive associations between faith and health have increasingly been recognized within the health care sector, making attention to patients’ faith resources a part of multidimensional care. However, nurses experience challenges with incorporating spiritual or religious issues into clinical practice. This paper aims to investigate how hospice nurses understand and integrate faith, and how they experience the significance of faith for the dying cancer patient in a hospice setting. The investigation uses the qualitative research methodology Interpretative Phenomenological Analysis, and data is generated through semi-structured individual interviews with hospice nurses. The analysis revealed that the hospice nurses experience faith as broad and difficult to define. When incorporating faith in the patient encounter the nurses draw on various personal competences. It is concluded that there is a clear recognition among the nurses that faith attains a special significance in the encounter and confrontation with death.
Background: Relatives’ experiences of encounters with nursing staff in residential homes have significance for the relationship with patients as well as for cooperation with the staff. The purpose of this study is to explore the relatives’ experiences of encounters with nursing staff in residential homes.
Methods: The selected method is metasynthesis, which implies a reinvestigation of published research articles with the purpose of bringing analysis to a higher level. Articles were identified in the databases: CINAHL, PubMed, PsykInfo, Proquest: a total of 11 articles and 155 family relatives represented.
Findings: Relatives’ experiences with nursing staff in residential homes can be structured in three phases; entrance, stay and departure. Each phase that relatives experience is parallel to that of the patients, but not identical.
Conclusion: The nursing staff’s encounters with relatives are affected by changing needs that both patient and relatives perceive. Awareness of how relatives experience the needs in each phase may strengthen and further develop relationships between relatives and nursing staff.
Aim: To explore the experience of relatives of patients with severe Chronic Obstructive Pulmonary Disease (COPD), in and out of the hospital.
Background: COPD is associated with low quality of life, anxiety and depression. The carer in the hospital has the primary focus on the patients. Therefore, further understanding is needed, which is focused on what the relatives experience.
Methods: A qualitative design was used with six focus groups conducted in 2015 with 12 relatives of patients with severe COPD. They were analysed with Malterud’s systematic text condensation.
Results: Three main themes emerged: Concern and anxiety is a part of the relatives’ everyday life. Information and knowledge about COPD is necessary. To be a relative of the patient means major responsibility.
Conclusions: Relatives want to be the main caregiver, but seek knowledge and support from the healthcare professionals.
4/2018 Årgang 32
Annelise Norlyk, lektor, ph.d., cand.cur., Aarhus Universitet, Institut for Folkesundhed, Sektion for Sygepleje
Aarhus Universitet v/ Bente Martinsen Woythal
Institut for Folkesundhed, Sektion for Sygepleje, Campus Emdrup
Tuborgvej 164, bygning B
2400 København NV