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Background: Studies concerning the everyday life of patients with chronic kidney disease (CKD) have focused on patients, and not on relatives. However, relatives share and are affected by the same consequences as the patient with regard to changes in everyday life, roles in the family and mutual relationship. Aim: To gain insight into the needs of the relatives of patients with CKD with regard to their ability to provide support in everyday life, and their experiences of participation in care and treatment. Method: A qualitative study based on four focus group interviews with relatives. Results: Relatives provided substantial support to the patient both in everyday life and in care and treatment, and it was a constant challenge to find a balance between being supportive and taking over. Conclusion: Relatives expressed a need for recognition in everyday life and by the healthcare professionals, as well as a need for sharing experiences with other relatives.
Nøkkelord: chronic kidney disease,everyday life,experiences,participation,relatives
Bakgrunn: Omdreiningsaksen er de tradisjonsbårne kunnskaper og innsikter som faglig skjønn, fantasi og moralsk dømmekraft i diskusjon med bruk av teknologi og roboter i helsevesenet. Teknologi og roboter må forstås innenfor et politisk styresystem, og artikkelens hovedanliggende er at teknologier og helsevesenets kulturelt skapte praksiser vurderes i et kritisk lys. Arbeid med tradisjonsbårne grunnfortellinger er en måte å oppøve evnen til å analysere og å løfte frem de ontologiske spørsmålene på som lett glemmes i entusiasmen for teknologiske fremskritt (I).
Nøkkelord: skjønn, kunst/teknikk, sansesamspill, teknologi, roboter, grunnfortellinger
The aim was to evaluate a support group for young vulnerable mothers. The frame of reference was phenomenological-hermeneutical; data was generated through nine semi-structured interviews, which were analyzed with systematic text condensation, as outlined by Malterud. Five themes were identified: a healthy life style – from junk food to vegetables, becoming a better mother, meeting like-minded others, being taught – preferably not too much like in school, and creating more time to talk. More specifically, the mothers experienced that they improved the quality of their food intake. Socially, it was a positive experience to meet mothers like themselves. The input and the guidance from professionals were helpful and instructive, but some sessions were too much like school. The mothers expressed a desire for more time to talk about their individual situations. In general, the mothers experienced improvements in their abilities as mothers.
Research has revealed that having seriously ill parents is stressful for adolescents and young adults. This can have social and psychological consequences that interfere with their development. Currently the Danish health care system does not provide any systematic attention to how nurses can support and understand young relatives of seriously ill or dying parents. The aim of this study is to gain knowledge about the challenges that nurses confront in the hospital sector in regards to supporting and assisting young relatives to cope with a seriously ill or dying parent, as well as to gain insight into how nurses can assume responsibility in helping and supporting them. Method and findings: One focus group interview with hospital nurses was done. A hermeneutically inspired interpretation revealed three major themes about the challenges the nurses faced in helping and supporting relatives: «the young relatives a closed group» – «family structures in the affected family» – «the family love shield» «nurses’ responsibility» – «unsolid ground but not unprofessional». Conclusion: By increasing attention to the factors that prevent nurses from engaging in a more systematic approach to the families, nurses’ support (and that of other health professionals) can become less random and more active.
Nøkkelord: adolescent, child, nurse, seriously ill parents, palliative care
Background: This article provides a reflection on the concepts of caring and health promotion in nursing. Object: How can the concepts of caring and health promotion be combined in nursing? Theoretical root: It is important in all sciences to define and discuss the meaning of different concepts and how they relate to each other. Caring in nursing includes reflection as well as nurses’ attitudes and their intentions. Nursing theorists describe several conditions of care. Health promotion in nursing is a relatively new concept concerning a holistic approach, coping and the use of a salutogenetic approach. Conclusion: A health-promoting approach, involving a bio-psycho-social-existential understanding, is discussed as a paradigm shift in nursing. The distinction between cure and care still remains a challenge in nursing science; a deeper understanding of the contents of the concepts of care and health promotion together with an understanding of the different levels of care, may contribute to meet these challenges.
This essay emphasizes how materiality, for example room and clothes, is a co-creator of patient and healthcare interaction in hospitals and of the opportunities for patient involvement in the patient’s own course of disease.
The hospital is a special physical context with special social activities. You need to have experienced hospital rooms to be able to perceive and understand the social activities in them. An understanding of this is required to be able to interact with healthcare professionals from a position where you as a patient feel competent. Healthcare professionals therefore need to reflect on how to invite newcomers, such as patients, into hospital settings and create an atmosphere that promotes patient participation. This discussion about what role the surroundings play for patient involvement is exemplified through a glance at the operating theatre.