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Background: Denmark has high numbers of drug-related overdose deaths. However, knowledge is lacking regarding the impact that these deaths have on significant others. Aim: To describe the relatives’ experiences with drug-related deaths before, under and after the fatal overdose. Methods: Systematic text condensation of data obtained from five research interviews with relatives who had lost a total of six members of their family due to drug-related overdose death. Results: The world collapses when relatives experience drug-related overdose deaths. The experiences involve emotional and existential strain, which is often intensified as a result of previous stressful life circumstances and lack of professional support. Conclusion: Relatives’ experiences involve individual, cultural and structural factors, such as stress, loss, stigma, and the lack of coordinated support and help. These factors result in significant strains before, under, and after the fatal overdose; which affect quality of life significantly.
Background: Research and white papers highlight the possibility for patients in the palliative phase to stay at home despite a high level of symptom burden. Purpose: This study describes the experiences in relatives when cancer patients want to spend the last days of their lives at home. Methods: The study has a qualitative design and in-depth interviews were performed to gather data. Results: The sample consists of seven individual interviews with family caregivers representing different positions in the family. Four main themes emerged: (i) valuable time at home for the parties involved, (ii) being available all day and night, (iii) relief of the patients' symptoms and fulfilment of their desires, (iv) experiences and follow-up from the health care system. A synthesis reveals the concepts responsibility and dependence. Conclusion: relatives dealing with palliative care at home have a strong engagement and need stamina to handle complex physical and psychological demands and suffering. Additionally, relatives in this study describe a high level of responsibility as well as being dependent on support from the health care system.
Background: The incidence of spondylodiscitis is increasing, but despite this there has been limited focus on the patient’s personal experience of the disease. Aim: To investigate patients’ experiences during their admission to hospital and during follow-up. Methods: qualitative interviews and patient observation. Data: Five informants were included. Analysis: Ricoeur’s three levels of data analysis were used. Quality assurance was made by three principles: transparency, validity and recognisability. Results: Pain and insufficient pain alleviation were very prominent and common patient experiences. Discussion: Pain as a so dominant issue was somewhat surprising. It seems that health care personnel see pain mainly as object-knowledge, because patients’ experiences were apparently not included very much in treatment decisions. Perspective: If pain is considered as both object-knowledge and relational-knowledge, the data indicate that health care practice and treatment may be improved substantially. Our findings in this pilot study could with advantage be investigated in a larger scale project.
Nøkkelord: Pain and hospitalization, patient perspective, quality research, spondylodiscitis
This study explores the understanding of falls and investigates how fall prevention is managed, administrated and practiced in a Danish fall prevention program. Methods: A discourse analysis inspired by Foucault is constructed. The material consists of a field study conducted at a falls clinic including participant observations, conversations and documents. Results and conclusion: The understanding of falls ranges from preventable and predictable accidents to natural and inevitable events. Fall prevention was managed, administrated and practiced through medical surveillance and self-surveillance, which produced and reproduced biomedical understandings of falls drawing on medical surveillance and health discourses. Older adults were constructed as pre-patients, passive/active fall patients and responsible self-caretakers. The study is intended to provide health professionals with a deeper understanding of the complexity of fall prevention in late life and to inspire the development of new fall prevention services.
Relatives of heart patients in rehabilitation often perceive their situation as stressful. Home-based rehabilitation through telemedicine changes their situation. This study seeks insight from relatives’ perception of heart patients’ participation in telemonitored cardiac rehabilitation (TCR). The study was based on semi-structured interviews with three relatives. We found that the relatives perceived TCR as an integrated part of everyday life. If the patient’s lifestyle was unhealthy, or exercise-based rehabilitation needed to be adjusted, the relatives had confidence in the monitoring equipment and feedback from the nurse. This supported them in continuing their normal routines. Additionally, the three relatives took part in the patients’ rehabilitation, because they found it important. The downside was, nevertheless, the relatives’ concern about their future role as responsible for their partners’ maintenance of a heart-friendly lifestyle. However, the relatives expressed their partners’ participation in TCR as predominantly positive.
Comprehensive patient information given preoperatively decreases preoperative anxiety, reduces postoperative analgesia use and increases patient satisfaction. Animated information might reduce preoperative anxiety and improve learning abilities despite degree of Health Literacy. The present study aimed at describing the influence of animated information on preoperative anxiety, measured on a VAS scale, for patients undergoing fast track hip surgery. Furthermore, we described demographic characteristics on patients with and without reduced preoperative anxiety after having seen animated information. The results suggest that animated information might lead to a small reduction of preoperative anxiety, and this reduction might be larger among patients with highest preoperative anxiety and lowest educational level. These findings are further studied at the Elective Surgery Centre at Silkeborg Regional Hospital.