The aim of this study was to describe how people with Parkinson’s disease experience life during their first year of treatment with Deep Brain Stimulation. Four people were interviewed at three different times during the first year following the operation. Data were analysed using the phenomenological-hermeneutic methodology of Max van Manen, and the data analysis revealed a uniting theme, that can be described as the experience of being a participant in making decisions in life. The meaning of this theme changes during the first year, involving other themes and, in time, changing themes. An important finding is that previous experience with Parkinson’s disease reflects on life after the operation, creating both hope and uncertainty about the future. Therefore, nurses must be aware that patients may need help and support in order to believe in their own ability to challenge life, to create new meaning and to recapture life itself.